support groups

Have felt so alone this last year and love coming across things like this...There needs to be more of them!! Anyone know of any other? Anyone on Facebook to talk to each other on bad days? Sometimes it's nice to just talk to someone who knows....

Hi, My name is Rebecca i have been suffering with chronic idiopathic urticaria angiodema for 16 months , My first episode was horrible and caused me to have anafilixis and hospitalized for 2 days . I was sent home at the time with out a diagnosis. i was forced to stay in bed on steroids and basically no clothes just a sheet on my skin . very itchy. red .painful . swelling.. after visiting a immunologist i was given lots of blood work .bone marrow test to rule out other diseases .. I have talked to my Dr about disability some days i cant wear shoes or put my clothes on she said no problem i take so much medicine its hard to function at work or drive.. but from some research i gather its going to be a fight to get my disability.. anyone out there received disability for this condition???

Good luck, Rebecca! Please keep us posted if you win. I am in the same place, I'm in my 7th straight unrelenting month now and I can't maintain. I can't anymore. I can't work, I can't take care of my kids, I can't even take care of me :(

Hi there! My name is Renata Muraro and in my company, we are interested in building a community for patients, doctors and families to be able to openly discuss about Urticaria related topics, tell their stories, share their struggles, tips and tricks and just have fun together.

Going through this website, I read each one of your testimonials, which interested me so much. I think it is very brave of you sharing your story, congratulations!!!!

We are looking for men and women, children and families all around the world that are willing to share their stories and engage in our social media channels, helping us to create a strong community and spread good information! In case you are interested, I would love to set up a chat with you, and we could talk about how you can help. You can reach me out at Enable JavaScript to view protected content..

I am looking forward for your contact, just let me know!

Hi,

My name is James and I have had Solar urticaria for 2 years now. Summer is almost here and yet again I am trying to find some sort of relief. My skin breaks out into a red rash when exposed to sun. I was thinking of trying this low histamine diet ! Anyone else tried it ?

James